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GilukFamily

Jun 30, 2022

Contractures

I have been advised that as my son has established contractures Botox will not work for him?  He had an hypoxic brain injury in Dec 2019

0 answers

EvansSurvivor

Oct 26, 2021

Excessive sleepiness

My tbi occurred during a rear end collision 10 years ago. The  back of my brain and right side were injured. I am legally blind because of it. I have excessive sleepiness all the time-diagnosed as Hypersomnia a year ago. I also found out I was misdiagnosed with Major Depressive Disorder at the time of the accident until anout a year ago. The correct primary diagnosis is Psuedobulbar affect with a comorbity of depression. I have been taking cymbalta, abilify, trintellix for those 10 years. Nothing helps. I take modafinil for the Hypersomnia. It barely helps.  I take Neudexta for PBA. It helps.  I would like to hold down a job again someday. And build a life again but cannot stay awake physically or mentally very long. I shut down completely or I cry profusely  if I'm not taking meds As drs have attempted to wean me off throughout the years. Any advice for leveraging  neuroplasticity again?  Keeping awake, how to keep awake and what's causing the sleep to be in overdrive?  What recommendations for "wake up" therapies, physicians that specialize and cognitive therapies to get my brain back. Have an MBA from pre-accident that I cannot use bc of my recall and shut down. please help. 


evansalmighty229@yahoo.com

0 answers

Jun 15, 2021

Has anyone here gone to physical therapy for a driving evaluation before?

Doctor said it would be in a simulator and be 1-2 hours. The doctors haven’t released me to drive yet and I’m fine with that. Haven’t drive since Dec 17, 2020. However I’m wondering if they have the power to take your drivers license?? Also wondering if you can wreck in the simulator so I can prepare and also warn them of it being a major trigger.








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velivenuuSurvivor

May 10, 2021

Who was told that they will never be able to walk again but learned how to anyway?

I wasn’t told that, but I been in therapy since I woke up 2018 and it’s just taking it’s precious time

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meni65Caregiver

May 4, 2021

I am trying desperately to get my dad to follow commands after surgery. His eyes are now open. What should I be doing?

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jar_jarSurvivor

May 4, 2021

I'm really struggling on getting the motivation to walk again like I want to of course but I'm just too lazy and I hate it..

I had a stroke and a Tbi almost five years ago I just don't know if I should try anymore or just stay in a wheelchair idk life's just hard I need friends....

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