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EvansSurvivor

Oct 26

Excessive sleepiness

My tbi occurred during a rear end collision 10 years ago. The  back of my brain and right side were injured. I am legally blind because of it. I have excessive sleepiness all the time-diagnosed as Hypersomnia a year ago. I also found out I was misdiagnosed with Major Depressive Disorder at the time of the accident until anout a year ago. The correct primary diagnosis is Psuedobulbar affect with a comorbity of depression. I have been taking cymbalta, abilify, trintellix for those 10 years. Nothing helps. I take modafinil for the Hypersomnia. It barely helps.  I take Neudexta for PBA. It helps.  I would like to hold down a job again someday. And build a life again but cannot stay awake physically or mentally very long. I shut down completely or I cry profusely  if I'm not taking meds As drs have attempted to wean me off throughout the years. Any advice for leveraging  neuroplasticity again?  Keeping awake, how to keep awake and what's causing the sleep to be in overdrive?  What recommendations for "wake up" therapies, physicians that specialize and cognitive therapies to get my brain back. Have an MBA from pre-accident that I cannot use bc of my recall and shut down. please help. 


evansalmighty229@yahoo.com

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yarbanzo_beanCaregiver

Jul 16

What type of doctor or therapist was most helpful during your recovery?

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Jul 14

Can you describe your role as an occupational therapist for brain injury survivors?

Especially as compared to a physical therapist or speech language therapist?

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horsey22Survivor

May 20

Can occupational therapy help with someone who has vision issues?

I sustained a severe TBI over 20 years ago. I have just recently started to advocate for myself on different doctors and in helping things that I’ve been struggling with for 20 years. Because as you may know 20 years ago they didn’t have the support available to TBI patients like they do now. I have been to a vision therapist who says he could help me and I was feeling like he could with the exercises and the things he was doing with me on a weekly basis. However he does not take insurance at all, and he is very very expensive. So I have to look into different avenues. Someone had suggested occupational therapy.

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