You seem to be getting fatigued. Is it time for a rest? What can I do to make this easier, I don't know what all you go through but let's get through this together, just know you are not alone, I am proud of what you have accomplished, you are such a fighter, maybe it's time to rest. It's OK take your time to say what you need to. I still see the real you. It's gonna be OK we will get through this.

Acknowledge that the challenges must be hard and encourage taking breaks, time to breathe and rest when needed. It can be so hard when people try to relate and say yea I feel the same way sometimes. I know it’s coming from a place of care and love but it’s frustrating because we have felt both and this is entirely different.

WHAT should someone say to a TBI Survivor??  (I'm the mother of a TBI Survivor). Thank you!

Oh shit!!! I have had anger since my tbi. Many , many meds. All With Serious side effects. My current med. I take only 50 mg of Topiramate. Man, watch out!! Too high a dose makes u Not Intelligent! Doctors love to dope the hell out of us. Watch it, man!In addition, Jesus is my friend who I need. Exercise is another requirement for anger control. Plus, i encourage pets and a good therapist.Good luck!!

Listen to my meditations on Alexa. Color, go for walks .

Anger issues, what do you do to avoid them?

Yes, early in my recovery but learned if I stayed calm and not tense up (biofeedback) it was less of an issue. Over the years I learned this was caused by stress. Stress makes it harder to process information. The resulting fear triggers Amygdala Hijack. Subject: stress and amygdala hijackThese are the core youtubes I use in my brain injury peer support groups. The Amygdala Hijack one has been the most effective in understanding how our survival instincts are triggered before and after brain injury.<a style="color: var(--blue-link);" rel="noopener noreferrer" href="https://youtu.be/tOWDKfDjmnk?fbclid=IwAR3_-N3brWiVA-WhlEaMnj1hxkOrGdDKFKXadeuI-nuE739L9-js6rgsv_M" target="_blank">https://youtu.be/tOWDKfDjmnk</a><a style="color: var(--blue-link);" rel="noopener noreferrer" href="https://youtu.be/rj6u2SIdEeg?fbclid=IwAR2qL5tLpPFHkLWmK0r3ReY_C44-lYaz59wdNTtvDx0jc1MQntfXp67oXA0" target="_blank">https://youtu.be/rj6u2SIdEeg</a><a style="color: var(--blue-link);" rel="noopener noreferrer" href="https://youtu.be/WuyPuH9ojCE?fbclid=IwAR0a7aJ16V3LuiPiEvmXnAE14ZMNhRf1udR-4EHqWgec-H_H4GcKi9gt1H0" target="_blank">https://youtu.be/WuyPuH9ojCE</a><a style="color: var(--blue-link);" rel="noopener noreferrer" href="https://youtu.be/VaRO5-V1uK0?fbclid=IwAR0gkkhxBebLzbhPy8eMIMuclAp_ENo0AV2cG_7980UCHCYPE9FQx55bm4M" target="_blank">https://youtu.be/VaRO5-V1uK0</a><a style="color: var(--blue-link);" rel="noopener noreferrer" href="https://youtu.be/YM3cXZ7CFls?fbclid=IwAR0H5SBroFonhIs78waAi_Fr9DPaQ588HNABOpXf50nuEC25DOHOCA8Fjys" target="_blank">https://youtu.be/YM3cXZ7CFls</a>

Aaallll the time. I believe it helps me from easily doing things incorrectly on auto mode though, and opens doors for outside the box thinking/methods. A lot of times there really is no right or wrong, just routine and perceptions. Stay positive,&nbsp;every one of us is simply human and WE are doing just fine, even with some quirkiness.

Does anyone else ever doubt themselves when they’re doing something most people do on rather or not you’re doing it right?

For my husband, I believe it was his Anger Management Therapist.

Find a therapist that does mindfulness/presence coaching. It took a long time, because my focus was so out of whack and I would forget everything I hadn't written down the minute I left the office&nbsp;, but practicing acceptance and training my focus on the present has been vital for me.

who has been the MOST helpful when helping you with the emotional aspects of embracing who you are now?

Yes! All those feelings I can relate too. I am 3 1/2 years post Abi. Best advice given to me was to seek out a mental health nurse practitioner familiar with brain injuries. With a little trial and error I am in a much better place then I was before. I don’t expect to ever be exactly the way I was before encephalitis hit me but improvement can happen. God bless and be well

Your brain reacts differently even to depression medication that you may have taken before the ABI or TBI in my case... or any medication because the reactions are now different. But it can be helped and navigated. I go to occupational therapy, vocational therapy and psychologist.

I suffered an ABI from hypoxia and sepsis in 2016. Since then my marriage has been crumbling. I’m not sure if it’s the depression &amp; PTSD, medication, or something actually physically wrong with my brain, but I do not feel love, empathy or joy the same way anymore. I feel like I have the range of emotions of a zombie

Do you have a difficult time feeling emotions the same way you used to?

If you can slow yourself down a little bit. This helps for me. Enter a meeting with intent, Interest, and desired outcome. It's all internal. Tell yourself you can and you WILL get through it.

Write some of or better yet, all of the questions you may have down on paper. So if you find yourself getting lost in the conversation you can refer back to your paper to stay focused and in the conversation. It works with meetings with DR's, lawyers, PT, OT etc... not as much with friends or family yet, sometimes it works there to depending on how receptive they are to your needs. Healing vibes!

Does anybody struggle with being easily confused when having any meetings or conversations with more then 1 individual? 

#1 Find another doctor. #2 My son swears a blue streak and never did before the injury. Many people have neurobehavioral issues following TBI. They could be in the form of verbal abuse (swearing), physical abuse, sexual abuse (like undressing every 5 minutes or smacking someone on the butt) There is therapy for these things.

Since my injury I’ve had issues with balance and locating myself in space. I don’t know the details but this could be part of what’s happening.

After my injury, I started swearing profusely. It was like I had Tourette Syndrome, it was so crazy! Also, my injury has been misdiagnosed, so the disability insurance ordered an IME from a neuropsychiatrist to make a determination. After talking to me for 20 minutes, the neuropsychiatrist determined that I was faking my injury. He stated I was "malingering". Since I couldn't help myself, I swore like a truck driver throughout the short interview. His report stated that I was intelligent enough to have researched brain injury and I got this symptom wrong though. His report states that if I did truly experience this my brain injury would be considered "severe" instead of mild. I am not faking my brain injury - it's been nothing short of hell and I've lost everything I own. Who the hell wants to fake this?? So, my question is has anyone else experienced the terrible swearing? And, I've just had so many invisible symptoms and this is one that I haven't paid much attention to because it's so insignificant compared to other symptoms. Is there a name for this? And, what part of my brain was injured to make me swear?

Has anyone else experienced the terrible swearing? 

Preferences change in all of us as we age. My nephew who is non verbal was aggressive with things he didn't like until he learned basic sign language. By being aggressive he is telling you something. My gran used to think because he was non verbal with mental delays he couldn't fend or decide for himself. When he was finally given choices the aggression started to go away.

Hello awesome peeps. Question regarding my son who is non verbal.. I trying to figure out why he no longer likes the water and ge has always been a water baby. Do your likes and dislikes change over time? Also he now gets really skittish and scared, acting out aggressively when we change him any where. It could be his bed, the floor, on a higher surface. It is as if he has lost balance or a sense his self in space. I really dont know I am so dumbfounded and would love some insight. He is very happy 99% of the time but when he's upset that 1% is vicious. I appreciate all feedback. I love this group and many of your posts are insightful. Us without TBI don't always understand the struggle. Thanks in advance from me and my little man Alex.

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WHAT should someone say to a TBI Survivor?? (I'm the mother of a TBI Survivor). Thank you!