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EvansSurvivor

Oct 26

Excessive sleepiness

My tbi occurred during a rear end collision 10 years ago. The  back of my brain and right side were injured. I am legally blind because of it. I have excessive sleepiness all the time-diagnosed as Hypersomnia a year ago. I also found out I was misdiagnosed with Major Depressive Disorder at the time of the accident until anout a year ago. The correct primary diagnosis is Psuedobulbar affect with a comorbity of depression. I have been taking cymbalta, abilify, trintellix for those 10 years. Nothing helps. I take modafinil for the Hypersomnia. It barely helps.  I take Neudexta for PBA. It helps.  I would like to hold down a job again someday. And build a life again but cannot stay awake physically or mentally very long. I shut down completely or I cry profusely  if I'm not taking meds As drs have attempted to wean me off throughout the years. Any advice for leveraging  neuroplasticity again?  Keeping awake, how to keep awake and what's causing the sleep to be in overdrive?  What recommendations for "wake up" therapies, physicians that specialize and cognitive therapies to get my brain back. Have an MBA from pre-accident that I cannot use bc of my recall and shut down. please help. 


evansalmighty229@yahoo.com

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0 answers

Jul 7

What do you recommend as the next path of treatment for vision deficits from acquired brain injury?

I suffered an acute attack of Wernicke's Encephalopathy–which is a type of brain injury–in February 2015 and was admitted following a seizure. As a result, I lost peripheral vision bilaterally, as well as 40% of my field of vision. After an evaluation by a neuro-ophthalmologist, it was determined that my brain is no longer processing the information that my eyes are sending.  I also developed horizontal nystagmus, which gets worse in low light. I have tried vision therapy and colored light therapy without any improvement.

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Jul 7

Can vision therapy help to address depth perception issues that I've had since my accident?

I noticed depth issues when playing tennis.

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Jul 7

Can vision therapy help me focus longer when reading or working on the computer?

My concentration isn't as good as before my injury.

0 answers

musical_nellyCaregiver

Jun 15

Has anyone been through vision therapy?

It has been recommended that my son tries it. He's 5, 5 years since his tbi occurred. It’s still all new to me. Any advice or opinions are appreciated.


0 answers

horsey22Survivor

May 20

Can occupational therapy help with someone who has vision issues?

I sustained a severe TBI over 20 years ago. I have just recently started to advocate for myself on different doctors and in helping things that I’ve been struggling with for 20 years. Because as you may know 20 years ago they didn’t have the support available to TBI patients like they do now. I have been to a vision therapist who says he could help me and I was feeling like he could with the exercises and the things he was doing with me on a weekly basis. However he does not take insurance at all, and he is very very expensive. So I have to look into different avenues. Someone had suggested occupational therapy.

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xible82Survivor

May 4

When fatigued, does anyone else’s vision become 4 inches off center?

Even better when you carefully park your car and it’s 1 1/2 feet over the line that you carefully navigated.

0 answers

HerculeschSurvivor

Apr 30

Who has done vestibular ocular therapy?

It has to do with your inner ear and eye sight...it helps with balance

0 answers

Apr 26

Has anyone had VISION THERAPY to help BALANCE when walking??

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