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EvansSurvivor

Oct 26

Excessive sleepiness

My tbi occurred during a rear end collision 10 years ago. The  back of my brain and right side were injured. I am legally blind because of it. I have excessive sleepiness all the time-diagnosed as Hypersomnia a year ago. I also found out I was misdiagnosed with Major Depressive Disorder at the time of the accident until anout a year ago. The correct primary diagnosis is Psuedobulbar affect with a comorbity of depression. I have been taking cymbalta, abilify, trintellix for those 10 years. Nothing helps. I take modafinil for the Hypersomnia. It barely helps.  I take Neudexta for PBA. It helps.  I would like to hold down a job again someday. And build a life again but cannot stay awake physically or mentally very long. I shut down completely or I cry profusely  if I'm not taking meds As drs have attempted to wean me off throughout the years. Any advice for leveraging  neuroplasticity again?  Keeping awake, how to keep awake and what's causing the sleep to be in overdrive?  What recommendations for "wake up" therapies, physicians that specialize and cognitive therapies to get my brain back. Have an MBA from pre-accident that I cannot use bc of my recall and shut down. please help. 


evansalmighty229@yahoo.com

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Jun 27

My sister is one year post-TBI. How would we determine physical, social or interactive goals for her?

She speaks and is in rehab to try to walk again, but only uses one arm, has post-traumatic amnesia, and cannot stay "present." And who would help us determine realistic goals for her? What about after she moves past her post-trauma amnesia?

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racerSurvivor

Jun 22

Who has tried mushrooms powder for enhancing the brain?

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Apr 19

Question for caregivers: does your loved one suffer from depression post injury?

My daughter can’t seem to be happy at all. She’s struggling with working, sleeping, and feeling like she has no friends. She seems to be sad more days than not. I want to help! She lives 3.5 hours away from me, but calls me daily telling me how bad her life is. I have tried to get her to move home so that I can help her manage her finances and help her to get back on her feet, but she is not willing to do that. How do I help? Is this a permanent side effect of the brain injury? Is she a victim of circumstance? She didn’t qualify for disability, and she struggles with her jobs. I’m at a total loss on how to help her. I have suggested finding a counselor (therapist) to talk to, but she doesn’t seem interested in that. I just want to help her. If anyone has any suggestions, they are greatly appreciated!! Thank you in advance!!

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Apr 12

What can I do to make my son want to engage in memory training?

He really struggles with motivation and even getting it started. Then when he gets frustrated he says I'm done and pushes the activity away. Suggestions welcomed. Also what did or do you use to help with memory? I have flash cards, puzzles ,pictures. I would like to know what you all think.

Thank you in advance.

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